European Reference Network for rare adult solid cancers, statement and integration to health care systems of member states: a position paper of the ERN EURACAN

Authors: Jean‐Yves Blay, Paolo G. Casali, Corinne Bouvier, Caroline Dehais, Iain Galloway, Jourik A. Gietema, Jana Halámková, Nadia Hindi, Ahmed Idbaïh, Emma Kinloch, H.-J. Klümpen, Teodora Kolarova, Kateřina Kopečková, József Lövey, Manuel Pedro Magalhães, Kersti Oselin, Sophie Piperno‐Neumann, A. Ravnsbaek, Muriel Rogasik, Akmal Safwat, Susanne Scheipl, Michael J. Seckl, Jane R. Taylor, M. Temnyk, Annalisa Trama, Mindaugas Urbonas, Markus Wartenberg, A. Weinman - ESMO Open 2021 cited by 36

The standard definition of ‘rare cancer’ is a malignant disorder with an incidence of <6 per 100 000 per year according to the Surveillance of Rare Cancers in Europe (RARECARE), with a wide variety of incidence for the different rare cancers.